I was born with Sickle Cell Anemia In Milwaukee, Wisconsin. My doctors knew right away because the white part of my eyes (sclera) were yellow with bilirubin. The disease affected me gravely. I was constantly in and out of the ER due to excruciating pain crises. It got me admitted at the hospital very frequently. Nurses recognized my face as I was there so often. I’ve had quite a number of treatments, medications and blood transfusions. They didn’t do much to help me because I still suffered from pain crisis.
It wasn’t until after my bone marrow transplant in 2019 that I was completely cured of Sickle Cell Disorder. The transplant was apart of a clinical trial that took place in Milwaukee, Wisconsin at Freodtert hospital & medical college.
Because it was a clinical trial, I did not have to pay. So, I do not know the exact cost but I’m aware it is very expensive because of the tests, procedures, medications, hospital stay, etc. The transplant happened January 10, 2019. I was 23 years old then and now 24.
It took 4 – 6 months for me to fully recuperate after the procedure and started feeling like myself again. Thereafter, l began to feel better and better physically. My Dad was my donor for the transplant. They look for tissue matches and he was a half tissue match.
Now, it’s a year after the Stem Cell Transplant and I feel great; no more pains and crisis. It’s the first year anniversary of the bone marrow transplant that cured my sickle cell. I feel fortunate to have had the opportunity.
I may be cured but l will always be a sickle cell survivor, so I will not just walk away from my community of warriors without advocating and spreading awareness about SCD. I wrote a poetry about it and I’m also writing a book about growing up with sickle cell. I just want to reach as many people as I can. So it means a lot that you’re (DISCON) helping me achieve it.
– By Daja Mora
Stem Cell Plant Recipient/
Sickle Cell Disorder Survivor.
DAJA MORA hopes her story encourages warriors and give reassurances that it isn’t all gloom or hopeless living with Sickle Cell Disorder.
From the stable of:
Disability & Sickle Cell Organization of Nigeria (DISCON).